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Learn More About This Book:

Table of Contents



Related Titles:

Capute and Accardo's Neurodevelopmental Disabilities in Infancy and Childhood, Third Edition

Children with Disabilities, Sixth Edition






Medical Care for Children and Adults with Developmental Disabilities, Second Edition
Edited by I. Leslie Rubin, M.D., & Allen C. Crocker, M.D.



"Enlightening to both the novice and the more experienced professional in the field ... an essential reference that will remain a 'must have' for years to come. If you can only buy one book this year, this is the one to buy!" —International Journal of Nursing in Intellectual & Developmental Disabilities

"Reader[s] will find something about almost everything having to do with caring for the disabled ... The editors and contributors continue to define the field." —Journal of Developmental and Behavioral Pediatrics

"Outstanding ... a thorough, readable and user friendly text concerning one of the most challenging areas of today's health care." —Robert T. Burke, MD, MPH, Primary Care/Special Needs Program, Hasbro Children's Hospital, Providence, RI

This completely revised and updated second edition of a definitive medical volume — trusted for more than fifteen years by students and professionals alike — is the only resource with in-depth information on clinical care for individuals with developmental disabilities across the lifespan. With a strong focus on clinical application, top experts from diverse specialties and management perspectives give readers the most up-to-date information on a broad range of specific disabilities and key care delivery issues. Clinicians will increase their knowledge of 

  • adult care in the community

  • women’s health

  • geriatrics

  • central nervous system complications

  • provision of primary and specialty medical care

  • systems of medical care delivery, including schools, community nursing, and clinical centers

  • clinical care for a range of conditions, including Down syndrome, cerebral palsy, Rett syndrome, fragile X syndrome, inborn errors of metabolism, and autism

  • specific areas of care, such as orthopedics, dermatology, neurology, eye and vision care, and cardiology

  • primary, secondary, and tertiary prevention

  • developmental therapies, including physical therapy and occupational therapy

  • assistive technology

  • end-of-life care

  • and many more

Double the length of its first edition (the highly respected Developmental Disabilities: Delivery of Medical Care for Children and Adults) this resource provides clinicians with comprehensive theoretical and practical information. A must-have for all program administrators and medical professionals who work with individuals with developmental disabilities, this essential reference will help readers provide the best assessment, treatment, and care for children and adults.




ORDERING INFO
ISBN 1-55766-766-7
Hardcover
752 pages /
8.5 x 11
2006 / $135.00
Stock# 7667


Exam Copy


Table of Contents

I. Programs of Care

  1. The Foundations of Medical Care
    Allen C. Crocker, M.D.

  2. The Developmental Disabilities
    Allen C. Crocker, M.D.

  3. The Spectrum of Medical Care
    Allen C. Crocker, M.D.

  4. Preventing Secondary Conditions and Promoting Health
    Donald J. Lollar, Ed.D.

  5. People and Programs
    Lauren C. Berman, M.S.W., Linda Freeman, M.S., and David T. Helm, Ph.D.

  6. Systems of Medical Care Delivery

    6.1 Clinical Centers and Teams
    Allen C. Crocker, M.D.

    6.2 The Health Department
    Deborah Allen, Sc.D.

    6.3 Community Nursing
    J. Carolyn Graff, Ph.D., R.N.

    6.4 Health Issues in School
    Peter J. Smith, M.D., M.A.

    6.5 Transition from Adolescence to Adulthood
    Karen L. Carter, M.Ed., M.D.

    6.6 Community Practice for Adults
    Marc T. Emmerich, M.D.

    6.7 The Role of the Nurse Practitioner in Care of Adults
    Adria Hodas, M.S.N., R.N., C.FNP.

    6.8 Nursing Homes
    Sandra L. Friedman, M.D.

    6.9 State Residential Facilities
    Theodor Feigelman, M.D., and Norberto Alvarez, M.D.

II. Clinical Care
  1. Inborn Errors of Metabolism

    7.1 Newborn Screening
    Paul M. Fernhoff, M.D.

    7.2 Mucopolysaccharoidoses
    Frances Dougherty Kendall, M.D., and Gerald Cox, M.D., Ph.D.

    7.3 Sphingolipidoses
    Deborah Marsden, M.B.B.S.

    7.4 Mitochondrial Disorders
    John M. Shoffner, M.D.

  2. Syndromes of Multiple Congenital Anomalies

    8.1 Spina Bifida
    Robert A. Jacobs, M.D., MPH

    8.2 Congenital Multisystem Disorders, Craniofacial Anomalies, and an Array of Genetic Disorders
    Lawrence C. Kaplan, M.D.

  3. Other Genetic Syndromes

    9.1 Rett Syndrome
    Alan K. Percy, M.D.

    9.2 Down Syndrome
    Allen C. Crocker, M.D.

    9.3 Fragile X Syndrome
    Jeannie Visootsak, M.D.

    9.4 Prader-Willi Syndrome
    Randell Alexander, M.D., Ph.D.

    9.5 Williams Syndrome
    Jeannie Visootsak, M.D.

    9.6 Angelman Syndrome
    Joseph Wagstaff, M.D., Ph.D.

    9.7 Phakomatoses
    Bruce R. Korf, Ph.D., and Elizabeth Thiele, M.D., Ph.D.

  4. Prematurity and Its Consequences
    I.
    Leslie Rubin, M.D.

  5. Cerebral Palsy
    Sarah Winter, M.D., and Michele Kiely, Ph.D.

  6. Neurology

    12.1 Congenital Anomalies of the Brain
    Norberto Alvarez, M.D.

    12.2 Epilepsy
    Norberto Alvarez, M.D.

    12.3 Other Neurological Conditions
    Norberto Alvarez, M.D.

    12.4 Tourette Syndrome
    Howard S. Schub, M.D.

  7. Orthopedics
    Daniel J. Hedequist, M.D., and Michael Millis, M.D.

  8. Gastroenterology

    14.1 Feeding and Nutrition
    Stanley A. Cohen, M.D., Cathleen C. Piazza, Ph.D., and Aruna Navathe, M.A., RD, LD, CSP, CDE

    14.2 Gastrointestinal Issues
    Laurie N. Fishman, M.D., and Athos Bousvaros, M.D., M.P.H.

  9. Pulmonology
    David A. Waltz, M.D. and Eliot S. Katz, M.D.

  10. Eye and Vision Care
    Anne B. Fulton, M.D., D. Luisa Mayer, Ph.D., Kathryn B. Miller, O.D., and Ronald M. Hansen, Ph.D.

  11. Otolaryngology

    17.1 Hearing Impairment
    Marilyn W. Neault, Ph.D.

    17.2 Ear, Nose, and Throat Care
    Margaret A. Kenna, M.D.

  12. Cardiology

    18.1 History of Management of Congenital Heart Disease
    Kenneth J. Dooley, M.D.

    18.2 Spectrum of Heart Disease
    William Mahle, M.D.

  13. Endocrinology
    Diego Botero, M.D., and Amy Fleischman, M.D.

  14. Dermatology
    Brian P. Pollack, M.D., Ph.D., Jason C. Hadley, and Jack L. Arbiser, M.D.

  15. Urology
    Bartley G. Cilento, Jr., M.D., and Stuart B. Bauer, M.D.

  16. Dentistry
    Joel Pearlman, D.M.D., and Edward Sterling, D.D.S.

  17. Mental Health and Behavior

    23.1 Autism Spectrum Disorders
    Raun Melmed, M.D., F.A.A.P., Kerim Munir, M.D., M.P.H., D.Sc., and Peter Tanguay, M.D.

    23.2 Attention-Deficit/Hyperactivity Disorder
    Mark L. Wolraich, M.D.

    23.3 Anxiety
    Alya Reeve, M.D.

    23.4 Depression
    Robert J. Pary, M.D., Mohamed El-Defrawi, M.D., Imran Khan, M.D., Matthew Parvin, M.D., and Nancy Hatch-Warner, M.A.

    23.5 Self-Injury, Aggression, and Pica
    Henry Roane, Ph.D., Wayne Fisher, Ph.D., Nathan A. Call, Ph.D., and Michael E. Kelley

    23.6 Crisis Prevention and Management
    Joan B. Beasley, Ph.D.

  18. Developmental Therapies and Functional Assistance

    24.1 Occupational Therapy
    Sharon A. Cermak, Ed.D., OTR/L, and Priscilla S. Osborne, M.S., P.T., P.C.S.

    24.2 Physical Therapy
    Priscilla S. Osborne, M.S., P.T., P.C.S., and Sharon A. Cermak, Ed.D., OTR/L

    24.3 Speech, Language, and Communication
    John M. Costello, M.A., CCC-SLP

    24.4 Assistive Technology
    Susan R. Cusack, M.Ed.

  19. Women's Health
    Sheryl White-Scott, M.D., Deborah Spitalnik, Ph.D., Yona Lunsky, Ph.D., and Susan Havercamp, Ph.D.

  20. Geriatrics
    Kathyrn Pekala Service, R.N., N.P., Carl V. Tyler Jr., M.D., MS, and Matthew P. Janicki, Ph.D.

  21. Severe and Profound Disabilities

    25.1 Complex Medical Problems
    I.
    Leslie Rubin, M.D.

    25.2 Exceptionality
    Allen C. Crocker, M.D.

  22. Infectious Diseases
    Harry L. Keyserling, M.D.

  23. Intensive Care: A Narrative
    Robert J. Graham, M.D.

  24. End of Life Care
    Sandra L. Friedman, M.D.

III. Values and Quality of Care

  1. Preventive Health Care
    Allen C. Crocker, M.D.

  2. Concepts of Holistic Care
    Linda L. Barnes, Ph.D., M.T.S., and David L. Coulter, M.D.

  3. Ethical Care
    Peter J. Smith, M.D., and David L. Coulter, M.D.

  4. Abuse and Neglect
    Randell Alexander, M.D., Ph.D.

  5. Utilization, Cost, and Financing
    Arnold Birenbaum, Ph.D., and Herbert J. Cohen, M.D.

  6. International Experiences in Health Care

    36.1 International Consultation
    David T. Helm, Ph.D., Alfred Brann, Jr., M.D., and I. Leslie Rubin, M.D.

    36.2 International Adoption
    Lisa Albers Prock, M.D., MPH


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